If you’re a young person with juvenile idiopathic arthritis (JIA), or a parent or carer of a young person with JIA, then you’ll be all to familiar with the form you are asked to complete at the hospital every time you visit the rheumatologist.

The form, also called the Childhood Health Assessment Questionnaire (CHAQ), is the most widely used measure of function in childhood arthritis. While it’s a way of helping to assess whether arthritis is impacting on everyday function; it’s not the most engaging thing to complete every time you go to clinic.

Therefore, researchers at The University of Manchester are looking to speak to young people aged 11 to 21 with JIA, to see how we could best measure everyday function in the clinic. For further information, please visit: https://apps.mhs.manchester.ac.uk/surveys//TakeSurvey.aspx?SurveyID=ml3H684M.

CHAQ HAQ Study

Written by simonrstones

Simon R. Stones BSc (Hons) is an award-winning patient advocate, consultant and researcher from Manchester in the UK, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, and board member of the European Network for Children with Arthritis (ENCA) and the European Network of Fibromyalgia Associations (ENFA).

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