Asking young people with arthritis about their daily activities

If you’re a young person with juvenile idiopathic arthritis (JIA), or a parent or carer of a young person with JIA, then you’ll be all to familiar with the form you are asked to complete at the hospital every time you visit the rheumatologist.

The form, also called the Childhood Health Assessment Questionnaire (CHAQ), is the most widely used measure of function in childhood arthritis. While it’s a way of helping to assess whether arthritis is impacting on everyday function; it’s not the most engaging thing to complete every time you go to clinic.

Therefore, researchers at The University of Manchester are looking to speak to young people aged 11 to 21 with JIA, to see how we could best measure everyday function in the clinic. For further information, please visit:


Written by simonrstones

Simon R. Stones BSc (Hons) is a multi-award winning patient advocate, consultant and researcher from Bolton in the United Kingdom. He was recognised in 2019 as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with chronic conditions and invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his mother. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, board member of the European Network for Children with Arthritis (ENCA) and President of the European Network of Fibromyalgia Associations (ENFA).

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