Dr Simon R Stones Writer, Traveller, Photographer & Advocate

Teaching and Conferences

Tutorials and seminars

  1. Wandering through the woods: The complexity of long-term conditions for young people and their families on HECS2186 Young People’s Development and Health, BSc Nursing (Child), April 2021, University of Leeds, Leeds, England, United Kingdom, invited by Dr. Linda Milnes. Doi: 10.13140/RG.2.2.33113.13920.
  2. Patient to advocate to leader: My journey with research on MSc Health Psychology (Online Course), February 2021, University of Liverpool, Liverpool, England, United Kingdom, invited by Dr. Louise Roper.
  3. Wandering through the woods: The complexity of long-term conditions for young people and their families on HECS2186 Young People’s Development and Health, BSc Nursing (Child), April 2020, University of Leeds, Leeds, England, United Kingdom, invited by Dr. Linda Milnes. Doi: 10.13140/RG.2.2.33113.13920.
  4. All is not as it seems: Unravelling the complexity of chronic conditions in children, young people and their families on HECS2186 Young People’s Development and Health, BSc Nursing (Child), April 2019, University of Leeds, Leeds, England, United Kingdom, invited by Dr. Linda Milnes and Professor Veronica Swallow. Doi: 10.13140/RG.2.2.36102.01607.
  5. All is not as it seems: Unravelling the complexity of chronic conditions in children, young people and their families on HECS2186 Young People’s Development and Health, BSc Nursing (Child), March 2018, University of Leeds, Leeds, England, United Kingdom, invited by Dr. Linda Milnes and Professor Veronica Swallow. Doi: 10.13140/RG.2.2.26765.23528/1.
  6. The creaking epidemic on Physiotherapy BSc (Hons) Programme, January-March 2018, Faculty of Health Studies, University of Bradford, Bradford, England, United Kingdom, invited by Dr. Lisa Edwards. Doi: 10.13140/RG.2.2.27734.34880.
  7. Introducing iSMART, April 2017, School of Healthcare Maternal, Child, and Family Health Research Group, University of Leeds, Leeds, England, United Kingdom, invited by Professor Linda McGowan and Professor Veronica Swallow. Doi: 10.13140/RG.2.2.34340.68486/1.
  8. Beneath the surface: Unravelling the complexity of long-term, chronic conditions on HECS2186 Young People’s Development and Health, BSc Nursing (Child), March 2017, University of Leeds, Leeds, United Kingdom, invited by Professor Veronica Swallow. Doi: 10.13140/RG.2.2.17241.11360.
  9. Arthritis – it’s not just an old person’s disease, March 2016, Centre for Musculoskeletal Research, The University of Manchester, Manchester, United Kingdom, invited by Dr. Suzanne Verstappen. Doi: 10.13140/RG.2.2.31941.45289.
  10. The importance of transitional care for young people with long-term conditions on HECS2186 Young People’s Development and Health, BSc Nursing (Child), February 2016, University of Leeds, Leeds, United Kingdom, invited by Dr. Veronica Swallow.
  11. Transition from child to adult care on NURS21060 Supportive Care Across the Life Continuum, BNurs Children’s Nursing, December 2014, The University of Manchester, Manchester, United Kingdom, invited by Dr. Veronica Swallow and Dr. Linda Milnes.

Organisation of national and international meetings

  1. European Network of Fibromyalgia Associations (ENFA) Annual General Assembly, Organising Board Member, 05 September 2020, Virtual.
  2. European Network of Fibromyalgia Associations (ENFA) Annual Conference and General Assembly, Organising Board Member, 18 May 2019, Heraklion, Crete, Greece.
  3. 4th EULAR Young PARE Conference, Organising Committee Member, 04 April 2019, Prague, Czechia.
  4. 1st European Im-Patient Conference, Steering Board Member, 17 October 2018, London, England, United Kingdom.
  5. 21st EULAR Annual European Conference of People with Arthritis and Rheumatism in Europe (PARE), Task Force Member, 15–18 February 2018, Brussels, Belgium.
  6. 3rd EULAR Young PARE Conference, Organising Committee Member, 15 February 2018, Brussels, Belgium.
  7. 20th EULAR Annual European Conference of People with Arthritis and Rheumatism in Europe (PARE), Task Force Member, 23–26 February 2017, Cascais, Portugal.
  8. 2nd EULAR Young PARE Conference, Organising Committee Member, 21-23 October 2016, Retie, Belgium.
  9. NIHR at 10 Conference, Patient and Public Involvement Advisory Committee Member, 18 May 2016, London, England, United Kingdom.
  10. 19th EULAR Annual European Conference of People with Arthritis and Rheumatism in Europe (PARE), Task Force Member, 15-17 April 2016, Sofia, Bulgaria.

Invited contributions to local, national and international meetings

  1. EULAR PARE Committee Meeting, Committee Member, 1-2 July 2023, Berlin, Germany.
  2. EULAR Task Force Meeting on Updating the EULAR Recommendations for the Collaboration of Patient Research Partners in Scientific Projects, Task Force Member, 27 April 2023, Amsterdam, The Netherlands.
  3. 19th Annual Meeting of ISMPP, Award Nominee, 23-26 April 2023, Washington, DC, United States of America.
  4. 23rd EULAR Annual European Congress of Rheumatology, Invited Speaker and Chair, 01-04 June 2022, Copenhagen, Denmark.
  5. 18th Annual Meeting of ISMPP, Invited Speaker and Moderator, 9-11 May 2022, Washington, DC, United States of America.
  6. The HRA at Ten: Progress to Date and Future Gazing, Invited Speaker, 17 February 2022, Virtual.
  7. 27th European Paediatric Rheumatology Congress, Invited Speaker, 17-21 September 2021, Virtual.
  8. 1st Child Health Technology Conference 2021, Invited Speaker, 02-03 March 2021, Virtual.
  9. Sheffield Hallam University College of Health, Wellbeing and Life Sciences Nursing and Midwifery Research Seminar, Invited Speaker, 30 November 2020, Virtual.
  10. EULAR Task Force Meeting on Therapeutic Drug Monitoring of Biopharmaceuticals in Rheumatology, Task Force Member, 26-27 October 2020, Virtual.
  11. 26th European Paediatric Rheumatology Congress, Invited Speaker and Chair, 23-25 September 2020, Virtual.
  12. European Network of Fibromyalgia Associations (ENFA) Annual General Assembly, President and Facilitator, 05 September 2020, Virtual.
  13. OMERACT Shared Decision Making Virtual Workshop, Invited Participant, 29 July 2020, Virtual.
  14. EULAR Study Group on Collaborative Research Meeting, Member, 17 June 2020, Virtual.
  15. 21st EULAR Annual European e-Congress of Rheumatology, Invited Speaker, 03-06 June 2020, Virtual.
  16. CISCRP/Janssen Immunology Global Community Advisory Board Meeting, Board Member, 12 February 2020, Spring House, PA, United States of America.
  17. HCPT Strategy Meeting, Invited Speaker, 01 February 2020, Dunchurch, England, United Kingdom.
  18. Parexel Patient Advisory Council Meeting, Member, 31 January 2020, Hounslow, England, United Kingdom.
  19. 9th European Meeting of ISMPP, Invited Speaker, 21-22 January 2020, London, England, United Kingdom.
  20. St. Joseph’s High School Year 11 Leavers’ Awards Evening, Invited Guest Speaker, 05 December 2019, Horwich, England, United Kingdom.
  21. 30th Annual Lupus Europe Convention 2019, Invited Speaker, 23-25 November 2019, Liverpool, England, United Kingdom.
  22. 10th EULAR Brussels Conference, Invited Delegate, 16 October 2019, Brussels, Belgium.
  23. Fibromyalgia Registry Meeting, Invited Member, 30 September 2019, Dublin, Ireland.
  24. Medical University of Vienna Qualitative Research Breakfast, Invited Speaker, 23 September 2019, Vienna, Austria.
  25. 20th EULAR Annual European Congress of Rheumatology, Invited Speaker, 12-15 June 2019, Madrid, Spain.
  26. European Network of Fibromyalgia Associations (ENFA) Annual Conference and General Assembly, Board Member, 18 May 2019, Heraklion, Crete, Greece.
  27. RCPCH Conference and Exhibition 2019, Invited Speaker, 13 May 2019, Birmingham, England, United Kingdom.
  28. 35th British Society for Rheumatology Annual Conference 2019, Invited Speaker and Co-Chair, 30 April-02 May 2019, Birmingham, England, United Kingdom.
  29. 22nd EULAR Annual European Conference of PARE, Invited Facilitator, 05-07 April 2019, Prague, Czechia.
  30. NIHR INVOLVE Diversity and Inclusion Working Group Meeting, Invited Speaker, 02 April 2019, London, England, United Kingdom.
  31. World Healthcare Congress Europe, Invited Chair, 06 March 2019, Manchester, England, United Kingdom.
  32. EULAR Points to Consider when analysing and reporting comparative effectiveness research with observational data in rheumatology Task Force meeting, Task Force Member, 04 March 2019, Zurich, Switzerland.
  33. CISCRP/Janssen Immunology Global Community Advisory Board Meeting, Board Member, 26 February 2019, New Brunswick, NJ, United States of America.
  34. European Medicines Agency (EMA) Pharmacovigilance Risk Assessment Committee (PRAC) Stakeholder Meeting on Methotrexate, Invited Stakeholder, 26 February 2019, London, England, United Kingdom.
  35. EULAR recommendation for the use of big data in rheumatic and musculoskeletal diseases Task Force meeting, Task Force Member, 13 February 2019, Amsterdam, Netherlands.
  36. The University of Manchester School of Biological Sciences ‘Meet the Professionals’, Invited Speaker, 07 February 2019, Manchester, England, United Kingdom.
  37. Parliamentary reception to mark two years since the publication of the RCPCH’s “State of Child Health” report, Guest, 23 January 2019, London, England, United Kingdom.
  38. 8th European Meeting of ISMPP, Invited Speaker, 22-23 January 2019, London, England, United Kingdom.
  39. PRIDE: Havas Lynx Celebration of Healthcare, Invited Guest, 02 January 2019, Manchester, England, United Kingdom.
  40. Actelion Global Scientific Information Lunch Talk, Invited Speaker, 06 December 2018, Basel, Switzerland.
  41. EULAR points to consider for the development, evaluation and implementation of mobile health applications for patient self-management in rheumatology Task Force meeting, Task Force Member, 29 November 2018, Amsterdam, Netherlands.
  42. EULAR recommendations on the assessment of competences in rheumatology across Europe Task Force meeting, Task Force Member, 19 November 2018, Amsterdam, Netherlands.
  43. EULAR points to consider/recommendations for including the perspective of young patients with inflammatory arthritis into patient-reported outcomes measures Task Force meeting, Task Force Member, 08 November 2018, Vienna, Austria.
  44. University College Dublin’s Facilitating a collaborative approach to arthritis and rheumatic disease research conference, Invited Speaker, 02 November 2018, Dublin, Ireland.
  45. 1st European Im-Patient Conference, Invited Panel Facilitator, 17 October 2018, London, England, United Kingdom.
  46. 15th Annual eyeforpharma Patient Summit Europe, Invited Delegate, 16-17 October 2017, London, England, United Kingdom.
  47. Children’s Chronic Arthritis Association (CCAA) Family Support Weekend, Invited Speaker, 29 September 2018, Castleton, England, United Kingdom.
  48. Leeds Children’s Hospital PPI Research Forum, Invited Speaker, 23 August 2018, Leeds, England, United Kingdom.
  49. 1st Manchester Digital Epidemiology Summer School, Invited Speaker, 19 July 2018, Manchester, England, United Kingdom.
  50. 4th iCAN Research and Advocacy Summit, Invited Speaker, 09-13 July 2018, Edinburgh, Scotland, United Kingdom.
  51. National Rheumatoid Arthritis Society (NRAS) Bolton Rheumatoid Arthritis Support Group Meeting, Guest Speaker, 05 June 2018, Bolton, England, United Kingdom.
  52. European Network of Fibromyalgia Associations (ENFA) General Assembly, Invited Participant, 12 May 2018, Attard, Malta.
  53. ME, CFS and Fibromyalgia Alliance Malta VO/818 and European Network of Fibromyalgia Associations (ENFA) Conference, Invited Speaker, 12 May 2018, Attard, Malta.
  54. ME, CFS and Fibromyalgia Alliance Malta VO/818 and European Network of Fibromyalgia Associations (ENFA) Parliamentary Session, Invited Delegate, 11 May 2018, Valletta, Malta.
  55. Arthritis Research UK Challenge Call Strategic Workshop, Invited Participant, 09 April 2018, London, England, United Kingdom.
  56. University of Central Lancashire (UCLAN) Centre for Children and Young People’s Participation Seminar, Invited Speaker, 21 March 2018, Preston, England, United Kingdom.
  57. The Hospital for Sick Children (SickKids) Child Health Evaluative Sciences Research Group Seminar, Invited Speaker, 05 March 2018, Toronto, Ontario, Canada.
  58. Glasgow Caledonian University School of Health and Life Sciences Research Seminar, Invited Speaker, 07 February 2018, Glasgow, Scotland, United Kingdom.
  59. University of Bradford Faculty of Health Studies, Invited Speaker, 29 January 2018, Bradford, England, United Kingdom.
  60. NIHR Manchester Clinical Research Facility Young Person’s Advisory Group Inaugural Meeting, Invited Speaker, 02 December 2017, Manchester, England, United Kingdom.
  61. 6th Children’s Research Network for Ireland and Northern Ireland Conference,  Invited Speaker, 29-30 November 2017, Dublin, Ireland.
  62. INVOLVE at 21 Conference, Invited Speaker, 28 November 2017, London, England, United Kingdom.
  63. The University of Manchester’s Child Health Research Network’s Workshop on Greater Manchester Devolution, Invited Speaker, 20 November 2017, Manchester, England, United Kingdom.
  64. 14th Annual eyeforpharma Patient Summit Europe, Panellist, 19-20 October 2017, London, England, United Kingdom.
  65. 8th EULAR Brussels Conference: The future of health research and innovation after Horizon 2020, Invited Delegate, 17 October 2017, Brussels, Belgium.
  66. 24th European Paediatric Rheumatology Congress (PReS), Invited Speaker, 14-17 September 2017, Athens, Greece.
  67. 16th European Network for Children with Arthritis (ENCA) Conference, Invited Speaker, 14-17 September 2017, Athens, Greece.
  68. Office for Life Sciences and NHS England meeting to discuss the use of patient data in research, Invited Guest, 28 July 2017, London, England, United Kingdom.
  69. 18th EULAR Annual European Congress of Rheumatology PARE session: Latest advances in the treatment and management of psoriatic arthritis and the latest news on the use of biosimilars in RMDs, Invited Session Chair, 16 June 2017, Madrid, Spain.
  70. Library and Information Health Network North West (LIHNN) / Health Care Libraries Unit (HCLU) briefing, Invited Speaker, 13 June 2017, Haydock, England, United Kingdom.
  71. Don’t Delay, Connect Today interview, Invited Speaker, 02 June 2017, London, England, United Kingdom.
  72. Tonic Life Communications interview about living with psoriatic arthritis, Invited Speaker, 21 April 2017, London, England, United Kingdom.
  73. Irish Children’s Arthritis Network transition workshop, Invited Contributor, 25 March 2017, Dublin, Ireland.
  74. Havas Lynx interview about living with juvenile idiopathic arthritis, Invited Speaker, 10 March 2017, Manchester, England, United Kingdom.
  75. Clinical Innovation and Partnering World 2017, Invited Speaker, 08 March 2017, London, England, United Kingdom.
  76. Diabetes UK Clinical Studies Groups lay and health care professional member induction, Invited Speaker, 27 February 2017, London, England, United Kingdom.
  77. BSPAR Conference 2016, Invited Q&A Session Co-chair, 29 November 2016, Manchester, England, United Kingdom.
  78. 1st Carion Fenn Foundation Health and Wellness Rare Disease Expo, Invited Panel Member, 24 September 2016, Ajax, Ontario, Canada.
  79. 8th Conference of the European Paediatric Formulation Initiative, Invited Speaker, 20-22 September 2016, Lisbon, Portugal.
  80. Diabetes UK Clinical Studies Groups inaugural chairs’ forum, Invited Speaker, 08 September 2016, London, England, United Kingdom.
  81. Arthritis Research UK ‘Working with arthritis’ parliamentary reception, Invited Guest, 05 July 2016, London, England, United Kingdom.
  82. 17th EULAR Annual European Congress of Rheumatology, Invited Speaker, 08-11 June 2016, London, England, United Kingdom.
  83. 2nd Annual DPharm Europe Conference, Invited Speaker, 09-10 February 2016, London, England, United Kingdom.
  84. Arthritis Research UK all staff day, Invited Speaker, 15 December 2015, Loughborough, England, United Kingdom.
  85. 2nd The University of Manchester Centre for Primary Care patient hack day, Pitcher Buddy, 30 September 2015, Manchester, England, United Kingdom.
  86. Arthritis Research UK young people’s project, Invited Speaker, 28 February 2015, Frome, England, United Kingdom.

Invited contributions to chair, facilitate and deliver workshops, education and training sessions

  1. What makes a patient author? 19th Annual Meeting of ISMPP, Moderator Support, 24 April 2023, Washington, DC, United States of America.
  2. Patient privacy throughout the medicine lifecycle, 19th Annual Meeting of ISMPP, Moderator Preparation, 24 April 2023, Washington, DC, United States of America.
  3. From childhood to adulthood – growing up with an RMD, PARE Session, 23rd EULAR Annual European Congress of Rheumatology, Co-Chair, 02 June 2022, Copenhagen, Denmark.
  4. Democratizing medical research and publishing – how to work with patients as authors on company-sponsored studies, 18th Annual Meeting of ISMPP, Invited Moderator, 10 May 2022, Washington, DC, United States of America.
  5. Improving understanding – developing plain language podcasts, 18th Annual Meeting of ISMPP, Invited Moderator, 09 May 2022, Washington, DC, United States of America.
  6. Shaping the future together with everyone around the table, Facilitator, 01 February 2020, Dunchurch, England, United Kingdom.
  7. Considerations for patient engagement and involvement, Facilitator, 22 January 2020, London, England, United Kingdom.
  8. #TheISMPPFutureRocks: Futurescape: immersive, inventive and in your hands, Invited Moderator, 22 January 2020, London, England, United Kingdom.
  9. How to make a good poster, Remote Facilitator, 24 November 2019, Liverpool, England, United Kingdom.
  10. Making research easier; helping paediatricians navigate research regulation, Co-Facilitator, 13 May 2019, Birmingham, England, United Kingdom.
  11. Patient and public involvement (PPI): How best to do it, Chair, 30 April 2019, Birmingham, England, United Kingdom.
  12. Children, young people and health technology project meeting, Co-Facilitator, 27 April 2019, York, England, United Kingdom.
  13. Effectively designing and presenting a poster, Facilitator, 05 April 2019, Prague, Czechia.
  14. Wouldn’t it be good if…: Patient perspectives, Chair, 06 March 2019, Manchester, England, United Kingdom.
  15. Pharma’s perceptions of patients, Facilitator, 17 October 2018, London, England, United Kingdom.
  16. Let’s talk about JIA – Express yourself, Facilitator, 29 September 2018, Castleton, England, United Kingdom.
  17. Getting to grips with involving and engaging children, young people and families in research, Co-Facilitator, 23 August 2018, Leeds, England, United Kingdom.
  18. Choosing meaningful outcomes for research: Making sure young people have their say, Supporting Facilitator, 12 July 2018, Edinburgh, Scotland, United Kingdom.
  19. Youth-identified needs in the transition from paediatric to adult care for children and youth with chronic and rare diseases, Co-Facilitator, 11 July 2018, Edinburgh, Scotland, United Kingdom.
  20. Using social media to promote iCAN, your chapter and your projects, Co-Facilitator, 09 July 2018, Edinburgh, Scotland, United Kingdom.
  21. Co-producing, evaluating and implementing information and support interventions for people living with long-term conditions, Co-Facilitator, 02 May 2018, Leeds, England, United Kingdom.
  22. Patient and public involvement (PPI) and communications training, Co-Facilitator, 11 April 2018, Leeds, England, United Kingdom.
  23. Hello iSMART, Facilitator, 13 January 2018, Liverpool, England, United Kingdom.
  24. Social media in research, Facilitator, 29 November 2017, Dublin, Ireland.
  25. Reaching out to patients: A digital patient engagement system informed by young people, Co-Facilitator, 18 November 2017, Liverpool, England, United Kingdom.
  26. Ensuring research really does involve the young person, Co-Facilitator, 08 November 2017, Manchester, England, United Kingdom.
  27. Consensus meeting for a future steroid induction regimen randomised controlled trial for young people with juvenile idiopathic arthritis, Co-Facilitator, 19 July 2017, Liverpool, England, United Kingdom.
  28. Patient and public involvement (PPI) and communications training, Co-Facilitator, 29 June 2017, Leeds, England, United Kingdom.
  29. The social media revolution: strategies to create and strengthen communication in a digital era (advanced level), Facilitator, 25 February 2017, Cascais, Portugal.
  30. The social media revolution: strategies to create and strengthen communication in a digital era (beginners/intermediate level), Facilitator, 24 February 2017, Cascais, Portugal.
  31. Using social media to deliver effective and engaging interactions, Facilitator, 22 October 2016, Retie, Belgium.
  32. Facilitating transition in young people with RMDs from child to adult, Co-Facilitator, 16 April 2016, Sofia, Bulgaria.
  33. How to set up a group for young people in your organisation, Facilitator, 15 April 2016, Sofia, Bulgaria.

Invited contributions to host online webinars, discussions and courses

  1. The University of Manchester Career Conversations – The Research Series on Consultancy, Webinar Speaker, 08 December 2022.
  2. MedComms Networking Webinar: Building a diverse MedComms workforce: Including people with (in)visible disabilities, Webinar Speaker, 30 November 2022.
  3. MedComms Networking Webinar: Illuminating science for patients and healthcare professionals through plain language podcasts, Webinar Speaker, 09 November 2022.
  4. MedComms Networking Webinar: Working as a medical publications professional, Webinar Speaker, 17 November 2021.
  5. EMEUNET 10 Days of Twitter Course, Course Co-leader, 18-29 May 2020.
  6. Invisible Illnesses 101, Tweet Chat Co-host, 29 January 2020.
  7. World Arthritis Day Tweet Chat: #Arthritisatwork, Tweet Chat Co-host, 12 October 2019.
  8. Expenses: Payment for patient partners involved in research (#WhyWeDoResearch), Tweet Chat Host, 20 May 2019.
  9. EMEUNET 10 Days of Twitter Course, Course Co-leader, 13-24 May 2019.
  10. 35th British Society for Rheumatology Annual Conference 2019, Guest Tweeter, 30 April-02 May 2019.
  11. WORD Day: Children and young people get rheumatic diseases too (#WORDDay2019), Tweet Chat Co-host, 18 March 2019.
  12. American Medical Association (AMA)’s Virtual Panel Discussion on Partnering with Patients and Caregivers to Drive Health Care Innovation, Featured Expert, 22-30 January 2019.
  13. Navigating the ethics system for your research studies (#WhyWeDoResearch), Tweet Chat Host, 14 May 2018.
  14. EMEUNET 10 Days of Twitter Course, Course Co-leader, 07-18 May 2018.
  15. A day in the life of: Balancing a PhD, advocacy and long-term health conditions (#HealthTweetFeast as part of #LeedsDigi18), Host, 20 April 2018.
  16. Using technology to aid supported self- management of long-term conditions (#HealthTweetFeast as part of #LeedsDigi18), Tweet Chat Co-host, 19 April 2018.
  17. Health Tweet Feast, as part of Leeds Digital Festival, Co-ordinator, 16-22 April 2018.
  18. Combating the Stigma of Chronic Illnesses (#WEGOHealthChat), Tweet Chat Co-host, 13 March 2018.
  19. British Medical Journal’s Evidence-Based Nursing Online Journal Chat: Healthcare 2.0: Social media in healthcare (#ebnjc), Tweet Chat Co-host, 19 July 2017.
  20. The role of the patient research ambassador (#WhyWeDoResearch), Tweet Chat Co-host, 18 May 2017.
  21. A Week To Tweet Online Course, Course Leader, 16-23 February 2017.
  22. The patient research ambassador initiative (#WhyWeDoResearch), Tweet Chat Co-host, 17 May 2016.
  23. BrightTALK patient research ambassador initiative webinar, Guest Speaker, 18 January 2016.
  24. The role of patient research ambassadors (#PRATalk), Tweet Chat Panellist, 8 September 2015.
  25. Arthritis Research UK National Arthritis Week, Social Media Champion, 7-13 October 2013.

Participation in local, national and international meetings

  1. 19th Annual Meeting of ISMPP, 23-26 April 2023, Washington, DC, United States of America.
  2. 23rd EULAR Annual European Congress of Rheumatology, 01-04 June 2022, Copenhagen, Denmark.
  3. 18th Annual Meeting of ISMPP, 9-11 May 2022, Washington, DC, United States of America.
  4. The HRA at Ten: Progress to Date and Future Gazing, 17 February 2022, Virtual.
  5. 27th European Paediatric Rheumatology Congress, 17-21 September 2021, Virtual.
  6. 15th International Family Nursing Conference, 28 June-02 July 2021, Virtual.
  7. 22nd EULAR Annual European Congress of Rheumatology, 02-05 June 2021, Virtual.
  8. 1st Child Health Technology Conference 2021, 02-05 March 2021, Virtual.
  9. Advances in Inflammatory Bowel Diseases Conference 2020, 09-12 December 2020, Virtual.
  10. EULAR Brussels Forum, 12 October 2020, Virtual.
  11. 26th European Paediatric Rheumatology Congress, 23-25 September 2020, Virtual.
  12. European Network of Fibromyalgia Associations (ENFA) Annual General Assembly, 05 September 2020, Virtual.
  13. 21st EULAR Annual European Congress of Rheumatology, 03-06 June 2020, Virtual.
  14. European Patients’ Forum (EPF) Annual General Meeting, 25 April 2020, Virtual.
  15. 9th European Meeting of ISMPP, 21-22 January 2020, London, England, United Kingdom.
  16. †European Network of Fibromyalgia Associations (ENFA) Annual Conference and General Assembly, 18 May 2019, Heraklion, Crete, Greece.
  17. NIHR CRN: Children/Versus Arthritis Paediatric Rheumatology CSG Meeting, 14 May 2019, London, England, United Kingdom.
  18. RCPCH Conference and Exhibition 2019, 13 May 2019, Birmingham, England, United Kingdom.
  19. 35th British Society for Rheumatology Annual Conference 2019, 30 April-02 May 2019, Birmingham, England, United Kingdom.
  20. 22nd EULAR Annual European Conference of PARE, 05-07 April 2019, Prague, Czechia.
  21. 2nd Great North Children’s Research Community Conference, 08 March 2019, Newcastle, England, United Kingdom.
  22. 8th European Meeting of ISMPP, 22-23 January 2019, London, England, United Kingdom.
  23. University of Leeds School of Healthcare PGR Conference, 06 November 2018, Leeds, England, United Kingdom.
  24. University College Dublin’s Facilitating a collaborative approach to arthritis and rheumatic disease research conference, 02 November 2018, Dublin, Ireland.
  25. 1st European Im-Patient Conference, 17 October 2018, London, England,United Kingdom.
  26. 15th Annual Patient Summit Europe, 16-17 October 2018, London, England, United Kingdom.
  27. Children’s Chronic Arthritis Association (CCAA) Family Support Weekend, 29 September 2018, Castleton, England, United Kingdom.
  28. Leeds Children’s Hospital PPI Research Forum, 23 August 2018, Leeds, England, United Kingdom.
  29. 4th iCAN Research and Advocacy Summit, 09-13 July 2018, Edinburgh, Scotland, United Kingdom.
  30. 19th EULAR Annual European Congress of Rheumatology, 13-16 June 2018, Amsterdam, Netherlands.
  31. National Rheumatoid Arthritis Society (NRAS) Bolton Rheumatoid Arthritis Support Group Meeting, 05 June 2018, Bolton, England, United Kingdom.
  32. European Network of Fibromyalgia Associations (ENFA) General Assembly, 12 May 2018, Attard, Malta.
  33. ME, CFS and Fibromyalgia Alliance Malta VO/818 and European Network of Fibromyalgia Associations (ENFA) Conference, 12 May 2018, Attard, Malta.
  34. ME, CFS and Fibromyalgia Alliance Malta VO/818 and European Network of Fibromyalgia Associations (ENFA) Parliamentary Session, 11 May 2018, Valletta, Malta.
  35. Realist Methodology in Health and Care Research Conference, 14 April 2018, Bangor, Wales, United Kingdom.
  36. Researching Patient Feedback for the NHS, 28 March 2018, Manchester, England, United Kingdom.
  37. Be Curious 2018, 17 March 2018, Leeds, England, United Kingdom.
  38. 21st EULAR Annual European Conference of PARE, 15-18 February 2018, Brussels, Belgium.
  39. GenerationR Liverpool Young Person’s Advisory Group Meeting, 13 January 2018, Liverpool, England, United Kingdom.
  40. NIHR Manchester Clinical Research Facility Young Person’s Advisory Group Inaugural Meeting, 02 December 2017, Manchester, England, United Kingdom.
  41. 6th Children’s Research Network for Ireland and Northern Ireland Conference, 29-30 November 2017, Dublin, Ireland.
  42. INVOLVE at 21 Conference,28 November 2017, London, England, United Kingdom.
  43. The University of Manchester’s Child Health Research Network’s Workshop on Greater Manchester Devolution, 20 November 2017, Manchester, England, United Kingdom.
  44. GenerationR Liverpool and Nottingham Young Person’s Advisory Group Meeting, 18 November 2017, Liverpool, England, United Kingdom.
  45. NHS Health Research Authority’s Meeting on the Ethical Issues of Research Involving Children, 08 November 2017, Manchester, England, United Kingdom.
  46. Digital Health Generation Health 2.0 Symposium, 03 November 2017, Salford, England, United Kingdom.
  47. University of Leeds School of Healthcare Postgraduate Research Conference, 01 November 2017, Leeds, England, United Kingdom.
  48. Fibromyalgia Action UK Annual Meeting, 28-29 October 2017, Paisley, Scotland, United Kingdom.
  49. 3rd Leeds Children’s Hospital Conference, ‘In Your Shoes’, 22 October 2017, London, England, United Kingdom.
  50. 14th Annual eyeforpharma Patient Summit Europe, 19-20 October 2017, London, England, United Kingdom.
  51. 8th EULAR Brussels Conference,17 October 2017, Brussels, Belgium.
  52. 3rd EULAR Network of Patient Research Partners Meeting, 06-08 October 2017, Amsterdam, Netherlands.
  53. BSPAR Conference 2017, 04-05 October 2017, Sheffield, England, United Kingdom.
  54. 24th European Paediatric Rheumatology Congress (PReS), 14-17 September 2017, Athens, Greece.
  55. 16th European Network for Children with Arthritis (ENCA) Conference, 14-17 September 2017, Athens, Greece.
  56. NHS Health and Care Innovation Expo 2017, 11-12 September 2017, Manchester, England, United Kingdom.
  57. 3rd iCAN Research and Advocacy Summit, 10-14 July 2017, Orlando, Florida, United States of America.
  58. 1st European Patients’ Forum summer training course for young patient advocates, 03-05 July 2017, Vienna, Austria.
  59. 18th EULAR Annual European Congress of Rheumatology, 14-17 June 2017, Madrid, Spain.
  60. NICE Annual Conference 2017,  18-19 May 2017, Liverpool, England, United Kingdom.
  61. 20th EULAR Annual European Conference of PARE, 23–26 February 2017, Cascais, Portugal.
  62. 7th Annual University of Leeds Postgraduate Research Conference, 05 December 2016, Leeds, England, United Kingdom.
  63. BSPAR Conference 2016, 29-30 November 2016, Manchester, England, United Kingdom.
  64. Fostering and sustaining UK, multidisciplinary, family-focused care across the life-course: a white rose collaboration in long-term condition management, 07-08 November 2016, Leeds, England, United Kingdom.
  65. University of Leeds School of Healthcare Postgraduate Research Conference, 19 October 2016, Leeds, England, United Kingdom.
  66. NIHR Patient Research Ambassador Initiative Project Operational Group Meeting, 29 September 2016, London, England, United Kingdom.
  67. NHS Health and Care Innovation Expo 2016, 07 September 2016, Manchester, England, United Kingdom.
  68. 2nd iCAN Research and Advocacy Summit, 27 June – 02 July 2016, Barcelona, Spain.
  69. NIHR Join Dementia Research Champions and Patient Research Ambassadors Joint Summer Meeting, 22 June 2016, London, England, United Kingdom.
  70. EULAR Network of Patient Research Partners Meeting, 09 June 2016, London, England, United Kingdom.
  71. 17th EULAR Annual European Congress of Rheumatology, 08-11 June 2016, London, England, United Kingdom.
  72. 19th EULAR Annual European Conference of PARE, 15-17 April 2016, Sofia, Bulgaria.
  73. 2nd EULAR Network of Patient Research Partners Meeting, 22-23 October 2015, Amsterdam, Netherlands.
  74. 1st Leeds Children’s Hospital Conference, 16 October 2015, Leeds, England, United Kingdom.
  75. BSPAR Conference 2015, 24-25 September 2015, Belfast, Northern Ireland, United Kingdom.
  76. Healthtalk Young People and Primary Care Young Persons’ Advisory Panel Meeting, 24 August 2015, Oxford, England, United Kingdom.
  77. 16th EULAR Annual European Congress of Rheumatology, 10-13 June 2015, Rome, Italy.
  78. 18th EULAR Annual European Conference of PARE, 24-26 April 2015, Dublin, Ireland.
  79. EULAR Task Force on Developing Standards and Recommendations for Transitional Care Management for Adolescents and Young People with Juvenile Idiopathic Arthritis, 20-21 April 2015, Zurich, Switzerland.
  80. Healthtalk Young People and Primary Care Advisory Panel Meeting, 24 March 2015, Oxford, England, United Kingdom.
  81. NIHR INVOLVE Conference, 26-27 November 2014, Birmingham, England, United Kingdom.
  82. EULAR Task Force on Developing Standards and Recommendations for Transitional Care Management for Adolescents and Young People with Juvenile Idiopathic Arthritis, 7-8 October 2014, Zurich, Switzerland.
  83. BSPAR Conference 2014, 25-26 September 2014, Leeds, England, United Kingdom.
  84. BSPAR Parent Group Meeting, 20 March 2014, London, England, United Kingdom.
  85. MCRN/Arthritis Research UK Paediatric Rheumatology Consumer Research Meeting, 21 February 2013, London, England, United Kingdom.
  86. Science, Ethics and Society Seminar, 19 February-22 March 2013, Manchester, England, United Kingdom.
  87. Manchester Medical Research Student Society Introduction to Academic Medicine, 13 November 2012, Manchester, England, United Kingdom.
  88. Central Manchester University Hospitals NHS Foundation Trust Rheumatology Consultation Day, 09 September 2010, Manchester, England, United Kingdom.

Participation in workshops

  1. Working with industry, 06 April 2019, Prague, Czechia.
  2. Speaking the same language: Improving communication, 02 November 2018, Dublin, Ireland.
  3. A new model, from drug to care, 16 October 2018, London, England, United Kingdom.
  4. Translating chronic pain creative writing workshop, 24 February 2018, Manchester, England, United Kingdom.
  5. How to influence policy and make a better world for people with RMDs, 17 February 2018, Brussels, Belgium.
  6. Don’t Delay, Connect Today in 2018 and beyond, 17 February 2018, Brussels, Belgium.
  7. Understanding the European policy landscape from an RMD perspective, 16 February 2018, Brussels, Belgium.
  8. Ethics of child and youth participation, 30 November 2017, Dublin, Ireland.
  9. Public private partnership in research and innovation, 17 October 2017, Brussels, Belgium.
  10. Enhancing self-management in young people using innovative and accessible technologies, 25 February 2017, Cascais, Portugal.
  11. Working with volunteers, 22 October 2016, Retie, Belgium.
  12. Pitching your ideas, 22 October 2016, Retie, Belgium.
  13. #DesignForMSK workshop, 12 August 2016, Manchester, England, United Kingdom.
  14. The University of Manchester HQIP PROMs/PREMs development workshop, 30 January 2016, Manchester, England, United Kingdom.
  15. Inventid products for people with musculoskeletal conditions, 08 December 2015, Manchester, England, United Kingdom.5
  16. What steps can organisations take to help people with RMDs self-manage? 25 April 2015, Dublin, Ireland.
  17. Establishing the Young PARE network, 25 April 2015, Dublin, Ireland.
  18. Young PARE strategy – from plan to action, 24 April 2015, Dublin, Ireland.
  19. The role of organisations in the development of health apps and e-health services for people with RMDs, 24 April 2015, Dublin, Ireland.
  20. Stratified and experimental medicine workshop, 28 March 2013, London, England, United Kingdom.

Participation in webinars

  1. ISMPP U – Plain Language Summaries (PLS) of Publications, hosted by ISMPP, 03 February 2021.