Perspectives of young people with arthritis on patient-reported outcome measures
A European League Against Rheumatism Task Force, which I am a member of, are aiming to incorporate the perspective of young people with…
JIA
JIA Research Opportunities
Patient and parent/carer representatives of the national paediatric rheumatology clinical studies group (CSG) have designed a young person- and family-friendly leaflet of clinical…
CLUSTER Parent and Patient Network (PPN) Launch Event
The CLUSTER consortium, funded by the Medical Research Council (MRC) and Versus Arthritis, brings together world-leading clinical, academic, scientific, statistical and industry expertise…
Check out the new and updated RheumaBuddy Beta app
Last year, I wrote about RheumaBuddy, an app offering a helping hand to people with juvenile idiopathic arthritis (JIA) and rheumatoid arthritis (RA),…
Developing an evidence-informed mobile app for young people with arthritis
Last week, our qualitative study describing the views of young people, parents, carers and healthcare professionals regarding the required components of mobile apps…
Tell others what it’s really like to be young and living with arthritis
Living with arthritis and related rheumatic and musculoskeletal conditions as a young person can be tough. From dealing with the symptoms, to managing…
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