Making research everyone’s business

Recently, I was approached by Weber Shandwick to contribute to a new initiative, called the Patient Research Exchange (PRE). PRE was founded by a group of patient advocates to foster mutual learning and collaboration.

The expertise of patients and carers is increasingly recognised as an essential component of research and no longer considered just a “nice to have”. Therefore, it is fitting that my first blog with the PRE highlights the importance of making research everyone’s business. Click here to read it!

Written by simonrstones

Simon R. Stones BSc (Hons) is a multi-award winning patient advocate, consultant and researcher from Bolton in the United Kingdom. He was recognised in 2019 as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with chronic conditions and invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his mother. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, board member of the European Network for Children with Arthritis (ENCA) and President of the European Network of Fibromyalgia Associations (ENFA).

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