Lupus awareness month

Lupus awareness month takes place during October in the UK every year. It is an important opportunity to raise awareness of this disease amongst the public and health professionals, as well as improving the understanding of the impact that lupus can have.

Although it sounds like a creature from Harry Potter, lupus is actually a type of rheumatic and musculoskeletal disease. The word lupus is Latin for wolf. Historically, lupus vulgaris, a severe facial rash rarely seen today, was once thought to resemble a wolf’s bite.

Lupus is an autoimmune disease where the immune system becomes overactive. It is a chronic disease which affects one or many tissues of the body, including the skin, joints, muscles, blood vessels and brain. Inflammatory and immune responses account for many of the symptoms observed in lupus, as this video from Lupus UK details…

Having witnessed the effects of lupus on my mother, as well as friends I’ve met through my work as a patient insight partner, I know only too well how limiting this condition can be, even though it is mostly invisible to the outside world. We need to do more to raise awareness of this disease in society, which is where Lupus UK and Lupus Europe come in. As well as supporting patients and their families, these organisations have raised the profile of lupus considerably over the last few years. With thanks to World Lupus Day and Lupus Awareness Month, more and more people are learning about this condition, and the impact on the lives of people living with it. Head on over to the Lupus UK Facebook page, where each day, a different fact about lupus will be shared. Please also share the poster below, and do your bit for people living with lupus.


Written by simonrstones

Simon R. Stones BSc (Hons) is a multi-award winning patient advocate, consultant and researcher from Bolton in the United Kingdom. He was recognised in 2019 as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with chronic conditions and invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his mother. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, board member of the European Network for Children with Arthritis (ENCA) and President of the European Network of Fibromyalgia Associations (ENFA).

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