A new and exciting young person’s healthcare research advisory group, in partnership with the Manchester Clinical Research Facility, is launching for anyone aged between 11 and 24 living in Greater Manchester. Don’t worry if you don’t have experience of healthcare research either. If you have an interest in getting involved and having a say on what researchers are working on, then this group is just for you!

The group, open to all young people aged 11 to 24 living in Greater Manchester, will be a place where healthcare researchers and young adults can share ideas, work together, and focus on making healthcare research accessible and interesting for young people across Greater Manchester. The group is also an opportunity for healthcare researchers to hear first hand about the health experiences and opinions of young people. This may include general health experiences, and specific experiences from young people living with long-term conditions, for example. Everyone is invited to join.

Some activities that you may become involved in include:

  • Providing advice to researchers on how to design their research so that young people will want to take part;
  • Reviewing information prepared for young people about research projects;
  • Reviewing applications for research funding and to explore how they can be made more relevant for young people’s needs;
  • Working out the best way for the group to communicate with one another.

As well as contributing to the work of researchers across Greater Manchester, you’ll also have the opportunity to meet new people, learn new skills and make your CV stand out from the crowd!

How to get involved

There will be two ways to get involved. You can either get involved in face-to-face meetings, online communication or both. If you or someone you know would like to be part of the group, please complete this online form: https://www.surveymonkey.co.uk/r/KS63BML.

Alternatively, if you have any questions about the group, please contact the group’s co-ordinator, Steven Edwards, by emailing steven.edwards@cmft.nhs.uk, calling 0161 276 3368 or messaging him directly on Twitter (@stevenypag).

Written by simonrstones

Simon R. Stones BSc (Hons) is an award-winning patient advocate, consultant and researcher from Manchester in the UK, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, and board member of the European Network for Children with Arthritis (ENCA) and the European Network of Fibromyalgia Associations (ENFA).

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