Fibromyalgia is a long-term condition characterised by widespread pain and profound fatigue. It’s not clear exactly how many people are affected by fibromyalgia, although research has suggested it could be a relatively common condition affecting around 1 in 20 people to some degree. Other symptoms of fibromyalgia often include unrefreshing sleep, headaches, an irritable bowel, cognitive disturbances, dizziness and sensitivity to environmental factors.

During Fibromyalgia Awareness Week 2017 (Sunday 3rd to Sunday 10th September 2017), Fibromyalgia Action UK and others will be raising awareness of fibromyalgia, and the impact it has on those living with fibromyalgia, and their friends and family. Given that fibromyalgia is an invisible disease, it is so important that we raise awareness of fibromyalgia, in order to broaden perceptions, knowledge and understanding of this condition. During the week, we will be sharing different perspectives from people living with fibromyalgia; family members; volunteers, patient organisation representatives, and healthcare professionals, in order to raise awareness and challenge some of the misconceptions people have about fibromyalgia.

How can you get involved?

You can get involved on social media by:

  • Joining our Thunderclap on Facebook, Twitter and Tumblr:
  • Adding a Twibbon to your Facebook and Twitter profile pictures:
  • Spreading the word by liking, sharing and retweeting our posts and videos on Facebook (@ukfibro) and Twitter (@fmauk)
  • Taking a selfie and posting it on social media using the hashtag #FightFibro. We’ll be sharing them throughout the week!

You can share resources with friends, family members, colleagues and other people in your community:

Help us to fight for freedom from fibromyalgia!

Fibromyalgia Awareness Week 2017 Thunderclap Banner copy


Written by simonrstones

Simon R. Stones BSc (Hons) is an award-winning patient advocate, consultant and researcher from Manchester in the UK, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, and board member of the European Network for Children with Arthritis (ENCA) and the European Network of Fibromyalgia Associations (ENFA).

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