Tell others what it’s really like to be young and living with arthritis

Living with arthritis and related rheumatic and musculoskeletal conditions as a young person can be tough. From dealing with the symptoms, to managing treatments, appointments, and different healthcare professionals – it can be pretty challenging! Add in all the normal things in your life, such as school, work, family and friends, and sometimes it can just feel overwhelming.

Now you have a chance to tell healthcare professionals and researchers what it’s really like to live with a rheumatic or musculoskeletal condition as a young person. If you are aged 10 to 24, and have arthritis, or another related condition such as lupus, dermatomyositis, or scleroderma, you could write a few sentences or a short paragraph (100 to 150 words) that will feature in the final chapter of a medical book that will soon be published by Springer, called ‘Adolescent and Young Adult Rheumatology in Clinical Practice’.

You can write about your experience, or what rheumatology services should look like for young people, or how young people like you should be involved in the designing future healthcare services for other young people.

If you are interested in contributing, or want to find out more, please email Laura Lunt: or call Laura on: 0161 275 1901.

You’ll need to send in your writing by 31st December 2017 – good luck!

Written by simonrstones

Simon R. Stones BSc (Hons) is a multi-award winning patient advocate, consultant and researcher from Bolton in the United Kingdom. He was recognised in 2019 as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with chronic conditions and invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his mother. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, board member of the European Network for Children with Arthritis (ENCA) and President of the European Network of Fibromyalgia Associations (ENFA).

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: