Fibromyalgia is a long-term condition characterised by widespread pain and profound fatigue. It’s not clear exactly how many people are affected by fibromyalgia, although research has suggested it is a relatively common condition affecting around 1 in 20 people to some degree. Other symptoms of fibromyalgia often include unrefreshing sleep, headaches, an irritable bowel, cognitive disturbances, dizziness and sensitivity to environmental factors.

During Fibromyalgia Awareness Week 2018 (Sunday 2nd to Sunday 9th September 2018), Fibromyalgia Action UK and others will be raising awareness of fibromyalgia, and the impact it has on those living with fibromyalgia, and their friends and family. Given that fibromyalgia is an invisible disease, it is so important that we raise awareness of fibromyalgia, in order to broaden perceptions, knowledge and understanding of this condition. Fibromyalgia Action UK’s theme for awareness week builds upon the theme for awareness day on 12th May 2018. ‘Don’t Delay, Connect Today’ aims to highlight that early diagnosis and recognition of fibromyalgia, and timely access to evidence-based treatment and support is essential for the long-term health and wellbeing of those living with fibromyalgia and their families.

FMA UK Fibromyalgia Awareness Week 2018 Alternative Banner v1.0

How can you get involved?

Access Fibromyalgia Action UK’s campaign pack here.

You can also get involved on social media by:

  • Adding a Twibbon to your Facebook and Twitter profile pictures: https://twibbon.com/support/fibro2018
  • Spreading the word by liking, sharing and retweeting our posts and videos on Facebook (@ukfibro), Instagram (@fma_uk) and Twitter (@fmauk)
  • Taking a selfie and posting it on social media using the hashtag #Fibro2018. We’ll be sharing them throughout the week!

You can share resources with friends, family members, colleagues and other people in your community:

Join in fighting for earlier recognition, better diagnosis and prompt access to the right treatment and support for each individual living with fibromyalgia and their family.

FMA UK Fibromyalgia Awareness Week 2018 Poster v1.0

 

Written by simonrstones

Simon Stones BSc (Hons) is an award-winning patient leader, advocate and researcher from Manchester in the UK, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with invisible illnesses, inspired and empowered by his own journey with arthritis, fibromyalgia, and inflammatory bowel disease since childhood. He is currently an Associate Fellow of the Royal Commonwealth Society, and a trustee of Fibromyalgia Action UK and RAiISE.

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