Share your thoughts about cannabis-based product use in fibromyalgia

Since Thursday 1st November 2018, some cannabis-based products have been available for prescription in the United Kingdom (UK). Some people with fibromyalgia have said that they use cannabis-based products to help with pain relief, but at Fibromyalgia Action UK, we would like to know a little more about people’s thoughts and experiences on this important topic.

Fibromyalgia Action UK, a charity of which I am a trustee of, has been invited to comment on the National Institute for Health and Care Excellence (NICE)’s draft scope guidelines on ‘Cannabis-based products for medicinal use’, which have been released for consultation. As a registered stakeholder, Fibromyalgia Action UK, along with a variety of other organisations in the UK, have an opportunity to be able to provide feedback prior to the guidelines being developed. As research liaison at the charity, I felt it was vital that we open up this feedback opportunity to a wider group of people with fibromyalgia, in the form of an online survey.

In addition to providing feedback to NICE, this is also a good opportunity to better understand people’s experiences specifically related to the use of cannabis-based products for helping to manage fibromyalgia. Fibromyalgia Action UK will use responses to: i) Share feedback on the draft scope guidelines published by NICE; and ii) Publish findings from this survey about experiences of using cannabis-based products among people with fibromyalgia, which may include direct quotes.

The survey can be accessed by clicking this link. This survey is completely anonymous as well.

Written by

Simon R. Stones BSc (Hons) MMRS is a multi-award-winning patient advocate, consultant, researcher, and writer from Manchester in the United Kingdom. He is recognised as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with a variety of health conditions, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his late mum. He is currently an Associate Fellow of the Royal Commonwealth Society and a trustee of RAiISE. He is the former President of the European Network of Fibromyalgia Associations (ENFA).

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