The CLUSTER consortium, funded by the Medical Research Council (MRC) and Versus Arthritis, brings together world-leading clinical, academic, scientific, statistical and industry expertise in juvenile idiopathic arthritis and uveitis, in partnership with children, young people and their families. The aim of CLUSTER is to improve the lives of children living with these life-changing, complex conditions.

Following on from CLUSTER’s successful public project launch on Monday 11 March 2019, CLUSTER are now hosting a Parent and Patient Network (PPN) Launch Event, on the afternoon of Saturday 22 June 2019, from 12 pm until 4 pm at Weston House, Great Ormond Street Hospital, 63-67 Great Ormond Street, London WC1N 3HZ – and you are invited (that is, if you have JIA/uveitis, are a family member of someone living with JIA/uveitis, or are working in a charity to support young people with JIA and their families).

The CLUSTER Parent and Patient Network (PPN) will help link the existing charities and groups which already support and educate children, young people and families living with juvenile idiopathic arthritis (JIA) and JIA-associated uveitis, in order to keep them updated and engaged in the progress of the CLUSTER research project.

Over the next four years, the CLUSTER Parent and Patient Network (PPN) will seek involvement from children, young people and families via a series of tailored events across the UK and a website, to help inform and influence CLUSTER’s project partners of preferences and feedback. This first event will centre around identifying themes for future workshops that will help develop the network, as well as providing information on what the network aims to do.

The venue limits how many people the CLUSTER team can accommodate on the day, so registration of for the free CLUSTER Parent and Patient Network (PPN) Launch tickets will be available on a first come, first served basis only, via Eventbrite. A play specialist will also be present on the day to occupy the youngest guests attending with their families!

Please RSVP here via Eventbrite!

Support for travel costs are available to help children and young people with JIA/JIA-associated uveitis and their families to attend.

If you have any questions or feedback (about this event, or CLUSTER in general), please contact the CLUSTER team by emailing: clusterconsortium@ucl.ac.uk.

More information about CLUSTER can be found here.


Written by simonrstones

Simon R. Stones BSc (Hons) is an award-winning patient advocate, consultant and researcher from Manchester in the UK, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, and board member of the European Network for Children with Arthritis (ENCA) and the European Network of Fibromyalgia Associations (ENFA).

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