ENFA Conference 2019

I’m looking forward to joining colleagues from across Europe in Crete on Saturday 18 May 2019 for the European Network of Fibromyalgia Associations (ENFA) Annual Conference and General Assembly 2019.

The theme for 2019’s conference is ‘A holistic approach to the management of fibromyalgia across the life course’. The aim of the conference is to highlight the complexity of fibromyalgia and chronic pain, due to the diverse symptoms which usually delay diagnosis for several years. In addition, the conference aims to demonstrate how the approach to managing fibromyalgia should be multifaceted, comprising of physical therapy, pharmacological therapy, psychological therapy and social support, made through shared decisions between the individual with fibromyalgia, their family and appropriate professionals.

Through such a holistic approach, we will discuss how management can be effective and thus how individuals with fibromyalgia can remain active, be independent and have a good quality of life. A life course focus is also highlighted in the conference, given that fibromyalgia can affect people of all ages.

There are a range of speakers from across Europe, including a workshop on the role of psychosocial factors in fibromyalgia, and insights about the importance of water exercise for fibromyalgia.

Take a look at the official conference programme below, and don’t forget to engage on social media using the hashtag #ENFA2019!

Written by

Simon R. Stones BSc (Hons) MMRS is a multi-award-winning patient advocate, consultant, researcher, and writer from Manchester in the United Kingdom. He is recognised as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with a variety of health conditions, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his late mum. He is currently an Associate Fellow of the Royal Commonwealth Society and a trustee of RAiISE. He is the former President of the European Network of Fibromyalgia Associations (ENFA).

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