Chronic illness, young people and COVID-19

RAiISE are dedicated to supporting young people who are living with chronic, often invisible, illnesses. The COVID-19 pandemic has been an incredibly difficult time for everyone, but especially for those who may be shielding, flaring, or struggling to access treatments or support.

RAiISE have created a survey, designed for those with chronic illnesses or parents/carers looking after children with chronic illnesses. The aim of the survey is to let RAiISE know how they can best support those in the chronic illness community during these challenging times.

Your experiences will be used by RAiISE to shape what they do to support young people with chronic illnesses. All of your responses will be anonymous, so that you won’t be identified from what you say. Responses may be included in a report on the impact of COVID-19 on the chronic illness community, which will be shared online.

Click here to take part.

Written by Simon R. Stones

Simon R. Stones BSc (Hons) MMRS is a multi-award-winning patient advocate, consultant, researcher, and writer from Manchester in the United Kingdom. He is recognised as one of the top 100 most influential people with disabilities in the UK, and was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with a variety of health conditions, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood, as well as a carer for his late mum. He is currently an Associate Fellow of the Royal Commonwealth Society and a trustee of RAiISE. He is the former President of the European Network of Fibromyalgia Associations (ENFA).

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