The #WhyWeDoResearch Tweetfest is back for a fourth year in 2019, building on three successful previous tweetfests since 2016. This year, it’s set to take place between Monday 13 May 2019 and Friday 24 May 2019, and there’s an amazing line up of chats led by people from around the world!

The #WhyWeDoResearch campaign was established in December 2014 by Claire Whitehouse, Lead Research Nurse at The James Paget University Hospitals NHS Foundation Trust. The aim of #WhyWeDoResearch is to raise awareness of research and opportunities for patients, carers, healthcare professionals and members of the public to participate, engage and become involved in research. The campaign has reached over 23 countries since its inception, with over 400 million impressions and over 45,000 Twitter accounts.

Using Twitter as a platform for promoting the campaign has enabled rapid and global connectivity, and the tweetfest exists to celebrate healthcare research across the globe. It aims to give patients, carers, healthcare professionals and members of the public a platform to say why they do what they do, and is used as a mechanism to share research opportunities for everyone. As such, the content of each tweetchat has been carefully selected to provide as wide a coverage as possible.

To join, all you need to do is type #WhyWeDoResearch into the Twitter search box at the time of each chat and the expert host(s) will launch their first question at the specified time. If this sounds new to you, there are lots of great resources out there to help you to get to grips with Twitter. I would recommend the #WeCommunities Twitterversity guidance if you would like to brush up your Twitter skills. There are also lots of useful materials about social media on my website, which you may find helpful.

So, here is the exciting line up for the #WhyWeDoResearch Tweetfest 2019. While it may be impossible to participate in them all, you will certainly be able to read the tweets afterwards to at least see the conversation.

Expenses: Payment for patient partners involved in research

I hope to see as many of you as possible at the tweet chat that I’m hosting on International Clinical Trials Day – Monday 20 May 2019 between 8 pm and 9 pm (GMT+1, BST), which is all about expenses and payment for patient partners involved in research.

The chat is pitched for everyone with an interest in healthcare – including patients, carers, healthcare professionals, researchers and anyone else keen to join!

We will be tackling everything related to payment and expenses for patient partners involved in research. Payment is a topic of great importance, but one which is often uncomfortable to discuss, and commonly brushed under the carpet! Well no more. During the tweet chat, we’ll learn about existing processes and structures in place regarding payment, as well as challenges and ways forward. I hope to see you there!

Written by simonrstones

Simon R. Stones BSc (Hons) is an award-winning patient advocate, consultant and researcher from Manchester in the UK, who was the winner of the international WEGO Health Award for Patient Healthcare Collaborator in 2017. He is a passionate advocate and ambassador for people living with invisible illnesses, inspired and empowered by his own journey with juvenile arthritis, fibromyalgia, and inflammatory bowel disease since childhood. He is currently an Associate Fellow of the Royal Commonwealth Society, a trustee of Fibromyalgia Action UK and RAiISE, and board member of the European Network for Children with Arthritis (ENCA) and the European Network of Fibromyalgia Associations (ENFA).

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