Some three months have passed since I was in Lisbon with my wonderful friends and colleagues to celebrate the 20th Annual European Conference of People with Arthritis/Rheumatism in Europe (PARE). While in the delightful Portuguese fishing town of Cascais - 30 kilometres West of Lisbon, we also recognised the 70th anniversary of the European League … Continue reading Reflections of the EULAR 20th Annual European Conference of PARE
The National Institute for Health Research (NIHR) in collaboration with the Clinical Research Network are showcasing the diversity of health and social care research in ‘People are Messy’. The event will begin with a film screening of ‘People are Messy’, a Theatre of Debate production which shows the dramatisation of patient and public involvement within health research. This will … Continue reading People are messy
Journal clubs have been around for years, providing a place and a time for health professionals and researchers to meet and discuss the latest literature. With advances in social media, journal clubs are now harnessing the use of digital technology by becoming online journal clubs, enabling anyone around the world with an interest in a particular field to meet … Continue reading Join the EULAR/EMEUNET online journal club!
As we move ever closer to the general election on June 8th, we find ourselves amidst the constant debates between party leaders, parliamentary candidates and other political activists who blame other parties and politicians for their actions, promising to change things in the next five years should they be elected into Government. Now, you have an opportunity to influence both your … Continue reading It’s the least we can do
Today, on World IBD day, I look back at the journey that I have taken while living with inflammatory bowel disease. Just when life seemed to finally be back on track, another obstacle came my way. Having lived with childhood arthritis from the age of three, I had grown up knowing nothing else but the daily … Continue reading My IBD Story
Two weeks ago, I attended an exciting and stimulating course at The University of Edinburgh about developing innovative methods in research with children and young people. The hands on two-day course provided us with opportunities to explore our own learning and development needs, consider how children and young people can be involved in the research continuum … Continue reading Innovative research with children and young people
Each year, Friday 12th May is recognised as fibromyalgia awareness day and the international awareness day for other chronic immunological and neurological conditions, including myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). May 12th was chosen as the awareness day for ME, CFS and fibromyalgia as it is the birthday of Florence Nightingale, since it is believed that … Continue reading Fibromyalgia Awareness Day
Following the fabulous success of the inaugural #WhyWeDoResearch Tweetfest in 2016, here's to a bigger and brighter #WhyWeDoResearch Tweetfest, which begins on Monday 15 May 2017 for two weeks! The #WhyWeDoResearch campaign was established in December 2014 by Claire Whitehouse, Lead Research Nurse at The James Paget University Hospitals NHS Foundation Trust. The aim of #WhyWeDoResearch is to raise awareness of research … Continue reading #WhyWeDoResearch Tweetfest 2017